FamilyConnect® Blog Archives

We Get to Learn From Our Son, Noah 

Posted on November 1, 2023 - 10:31 am by Spencer Hudson

toddler with one eye squats down on a porch while wearing a golden crown

When we found out we were pregnant with our second child, Noah, we did not expect to endure such a range of emotions. At Sarah’s 20-week ultrasound, we learned our baby had a cleft lip and palate. Further testing showed us a full picture of his structural abnormalities. We found out that his right ear […]

Letters to Parents: Youth and Outreach Librarian

Posted on August 23, 2023 - 8:04 pm by Stephanie Wambaugh

A person putting the talking library card into the reader.

Editor’s note: In this series of letters to parents, professionals share their knowledge with parents of children who are blind or have low vision. Our first letter is from Stephanie Wambaugh of the National Library Service (NLS). Books, Books, Books: That All May Read If you had asked me a decade ago while I was […]

Attending the APH ConnectCenter Family Retreat

Posted on July 12, 2023 - 12:32 am by Melissa Schenkel

A teen using a white cane and an adult walk down a hallway.

“I have never walked into a room full of strangers and instantly connected,” says Rob Harris. Rob attended the APH ConnectCenter Family Retreat recently held in Louisville, and he hasn’t stopped raving about the amazing connections he made or the amount of information he has absorbed since. Rob says that it wasn’t difficult to become […]

Max, My Son Who Is Deaf-Blind

Posted on June 21, 2023 - 8:15 pm by Tiara Jones

Adult sitting behind a teen who has a large grin and fingers resting in their mouth.

I’m Tiara, and my son’s name is Max. He has a rare genetic disorder called Chromosome 13, Partial Monosomy 13q, which is the partial deletion of the 13th chromosome that causes a combination of cognitive, sensory, and physical challenges. Our doctors initially told me not to expect Max to live. While dealing with that shocking […]

APH Code Jumper and Summer Fun

Posted on June 12, 2023 - 11:25 am by Melisa Matthews

Child creates a circuit with computer-mouse-sized Code Jumper pods. Text: APH Hive Getting Started: Code Jumper Unplugged Presented by Leslie Weilbacher, Robin Lowell, & Shelley Mack

Computer Science and Information Technology jobs have continued to rise over the last few years. The field of coding offers virtually endless job opportunities. It’s important for your child to explore this field. Many students start learning coding as early as kindergarten. However, your child with blindness or low vision might not have had the […]

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