Category Archives: FamilyConnect® Blog

Advocating for Max, My Son Who Is Deaf-Blind

Posted on June 21, 2023 - 8:15 pm by
Adult sitting behind a teen who has a large grin and fingers resting in their mouth.

I’m Tiara, and my son’s name is Max. He has a rare genetic disorder called Chromosome 13, Partial Monosomy 13q, which is the partial deletion of the 13th chromosome that causes a combination of cognitive, sensory, and physical challenges. Our doctors initially told me not to expect Max to live. While dealing with that shocking […]

APH Code Jumper and Summer Fun

Posted on June 12, 2023 - 11:25 am by
Child creates a circuit with computer-mouse-sized Code Jumper pods. Text: APH Hive Getting Started: Code Jumper Unplugged Presented by Leslie Weilbacher, Robin Lowell, & Shelley Mack

Computer Science and Information Technology jobs have continued to rise over the last few years. The field of coding offers virtually endless job opportunities. It’s important for your child to explore this field. Many students start learning coding as early as kindergarten. However, your child with blindness or low vision might not have had the […]

Sensing and Learning with the APH Hive

Posted on May 31, 2023 - 8:33 am by
A student looking up toward his teacher who is reading with him.

Does your child who is blind or low vision have complex needs? Partnering with your education team to gather information about how your child responds to activities at school and home is the first step towards building communication skills. As parents, we may want to know what is observed when determining our child’s present level […]

From Nondriver to Active Traveler

Posted on May 15, 2023 - 12:40 pm by
city bus

Teens who are blind or have low vision (and their parents) must make many transportation decisions. Will your child drive if they meet your state’s requirements? If not, how will they get around? Will they utilize a city bus or a hired driver? Driving represents a new level of independence and responsibility, and nondriving teens […]

Creating Inclusive Social Content

Posted on May 10, 2023 - 1:20 am by
Child wears headphones and uses iPad

Social media has become integral to our lives, from connecting with others over shared interests to documenting big and small moments. For parents, social media is often used to share about our families; however, as parents of children who are blind or low vision, some of the content we share about our children isn’t accessible […]

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