Advocacy Archives

When Blindness Isn’t the Only Barrier in Dog Guide Training

Posted on September 7, 2022 - 11:39 am by Alexis Read

Woman and dog guide in harness stand in front of a sign reading, “St. Augustine Light Station 1874”

Editor’s note: Alexis Read shares her journey to finding a dog guide school that tailored training and tools to her specific abilities as a woman with low vision and additional disabilities. I was born with a visual impairment and other disabilities that affected me physically and neurologically. My visual impairment hinders both my central and […]

A Dad’s Perspective: Learning My Son Has Albinism

Posted on September 6, 2022 - 10:50 am by Amy Lynn Smith

Fair-Skinned boy sitting at a table and smiling

Editor’s note: September is Albinism Awareness Month. In effort to increase awareness of albinism and subsequent low vision in children, APH FamilyConnect shares a dad’s story of learning his young son has albinism. Benjamin was born in November 2017. He was fair-skinned and blonde and looked exactly like we thought he would. Both of his […]

Journey to a Diagnosis of Leber Congenital Amaurosis

Posted on August 16, 2022 - 12:56 pm by Admin

An image of the Spirito family outdoors, Mom and Dad with their arms around two young, smiling girls wearing pink glasses.

Editor’s note: Brooklyn and Nick are raising two girls with Leber congenital amaurosis, an inherited eye condition characterized by a lack of activity in the retina. Today, they share their long road to receiving diagnoses. If you, too, have a child diagnosed with an eye condition, please know that 1) You are not alone, 2) […]

My Singing Journey

Posted on August 11, 2022 - 5:59 pm by Max Ivey

I’m writing to share the journey I have gone through to overcome and even thrive over a long-standing personal fear. Most people on the Ivey side of my family can play a musical instrument or sing; many can play multiple instruments. I recall loving singing with my dad and grandfather, J V, who was good […]

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