Category Archives: Deafblind

Advocating for Max, My Son Who Is Deaf-Blind

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Adult sitting behind a teen who has a large grin and fingers resting in their mouth.

I’m Tiara, and my son’s name is Max. He has a rare genetic disorder called Chromosome 13, Partial Monosomy 13q, which is the partial deletion of the 13th chromosome that causes a combination of cognitive, sensory, and physical challenges. Our doctors initially told me not to expect Max to live. While dealing with that shocking […]

National Center on Deaf-Blindness: Family Leadership, Engagement, and Empowerment

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Child with hearing aids playfully gives eyeglasses to an adult

Families are the experts in knowing their child, which should positively impact the decisions made for a child who is deafblind. Children who are deafblind have specific needs and considerations that are “compoundingly complex.” Families with a child who is deafblind will go through many stages of emotions and have different needs as they support […]

DeafBlind: Behind Screens

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A table set with dishes and drinks

Editor’s note: As the holidays approach and gatherings ensue, remember that the goal is not to prove yourself, a person who is blind or low vision, as worthy because you’re capable, independent, and mannerly. Enjoy your family and friends. George Stern, who is DeafBlind, shares a personal story about holding himself to an unnecessarily high […]

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