Category Archives: Deafblind

Celebrating Helen Keller – Her Life, Achievements and Indelible Influence

Posted on July 29, 2024 - 12:27 pm by
Helen Keller surrounded by a crown of young people

It may be hard to imagine, but Helen Keller – born June 27, 1880 – and her beloved teacher and friend, Annie Sullivan, were their era’s equivalent of TikTok stars.   Annie famously taught the deafblind Helen to learn language by forming letters in her hand, after which Helen learned to write, read braille, speak, and give public speeches. When Helen was an adult, […]

Advocating for Max, My Son Who Is Deaf-Blind

Posted on June 21, 2023 - 8:15 pm by
Adult sitting behind a teen who has a large grin and fingers resting in their mouth.

I’m Tiara, and my son’s name is Max. He has a rare genetic disorder called Chromosome 13, Partial Monosomy 13q, which is the partial deletion of the 13th chromosome that causes a combination of cognitive, sensory, and physical challenges. Our doctors initially told me not to expect Max to live. While dealing with that shocking […]

National Center on Deaf-Blindness: Family Leadership, Engagement, and Empowerment

Posted on May 9, 2023 - 4:02 am by
Child with hearing aids playfully gives eyeglasses to an adult

Families are the experts in knowing their child, which should positively impact the decisions made for a child who is deafblind. Children who are deafblind have specific needs and considerations that are “compoundingly complex.” Families with a child who is deafblind will go through many stages of emotions and have different needs as they support […]

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