Services for Children

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A number of national organizations are dedicated to the well-being of children with blindness or low vision, and they’re important sources of information and support for you.

Navigating the Journey: Support for Children with Visual Impairments

Discovering that your child is born with or has acquired blindness or low vision can be a daunting experience. It’s common to feel a mix of shock, confusion, and concern, especially when those in your immediate circle, like family members, local doctors, and schools, might not fully understand the impact on your child’s learning and education. However, you’re not alone in this journey. Numerous national, state, and local organizations exist to provide crucial support and information.

National, State, and Local Organizations

There are many dedicated organizations focused on the well-being of children who are blind or have low vision. These entities are invaluable sources of information and support for families navigating these challenges.

Center for Parent Hub

• This resource offers detailed information about Part C of the Early Intervention Program. It’s a comprehensive guide for parents looking to understand early intervention services.
  • Overview of Early Intervention | Center for Parent Information and Resources (parentcenterhub.org)

Council of Schools and Services for the Blind

• This council lists schools and agencies serving students with blindness or low vision by state, providing direct links to each state’s contacts, including the Department of Education and Special Education Agency.
  • Council of Schools and Services for the Blind

U.S. Department of Education

• Provides direct links to each state’s contacts. The state will list the direct link to the Department of Education, State Higher Education Agency, Special Education Agency, and the State Adult Education Agency.
  • U.S. Department of Education 

IDEA: Individuals with Disabilities Education Act

• The Individuals with Disabilities Education Act (IDEA) site offers extensive information about statutes and regulations for children with disabilities. It covers various aspects, including special education programs and resources for parents and families. This site covers Office of Special Education Programs, Office of Special Education and Rehabilitative Services, IDEA by State, and resources for Parents/Families.
  • IDEA: Individuals with Disabilities Education Act

Supplemental Security Income, SSI for Children

• Understanding Supplemental Security Income (SSI) for Children: This resource explains the eligibility and application process for SSI for children in detail, offering valuable guidance for families.
  • Understanding Supplemental Security Income SSI for Children

APH ConnectCenter Directory of Services

• APH Directory of Service allows you to search by state the resources that are available to you. The guide will list agencies supporting Early Intervention, Advocacy, Library, and other local needs. If you’re aware of an agency not listed, please contact [email protected] to include it.
  • APH ConnectCenter Directory of Services

Early Intervention

• For Early Intervention services and information for IFSP – Individualized Family Service Plan (Birth to 3 years old)

Educational Services

• Understanding the transition from Early Intervention services (for children birth to 3 years old) to an Individualized Education Program (IEP, for children 3 to 22 years old) is crucial. These programs are designed to provide tailored educational and developmental support, ensuring that your child’s unique needs are met.  IEP – Individualized Education program (3 years to 22 years old)