Suggestions for Maintaining Face-Down Positioning After Macular Hole Surgery
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By Joy R. Efron, Ed.D.
[Editor’s note: Joy R. Efron, Ed.D shares personal, in-depth suggestions for making the difficult face-down positioning period of recovery more comfortable – and “survivable.”]
The following was helpful for me, and I hope that some of this information will be helpful for you in pre-op planning. However, everyone is different, and you will probably discover other techniques/hints that work for you. Be sure to check with your doctor concerning any products mentioned in this document.
Importance of Face-Down Positioning
The pressure of the gas bubble is essential for the hole to close. Here is my layman’s reasoning/interpretation: If you have a bad cut and put on a Band-Aid, that Band-Aid needs to stay on for sound healing. The cut does not heal if you keep taking that Band-Aid off and putting it back on. The pressure of the gas bubble facilitates macular hole closure (like a Band-Aid on a cut).
The macula is located at the back of the eye. As a result, every time you lift your head, it’s similar to taking that Band-Aid off a cut. I walked, including up and down stairs, with my head down. After washing it and inserting eye drops, I picked up my head to rinse my hair. It was brutal, but I was determined.
Keep your head down as much as you can tolerate. Look at your toes, even when walking. Keep your face down. Do not cheat. Do not lift your head to greet or visit with visitors. If you can, rent a two-way mirror to enable you to see and be seen by visitors and to watch TV.
Vitrectomy (Face-Down) Equipment
I believe that without strict compliance to post-operative face-down positioning, macular hole surgery will most likely be unsuccessful or of limited success. It would have been impossible for me to remain face-down consistently for the six-week recovery period without vitrectomy (face-down) equipment.
Unfortunately, Medicare (and therefore many health plans) considers face-down positioning equipment to be “comfort” and “convenience” equipment and thus does not provide reimbursement for rental as durable medical equipment. Some health plans cover equipment rental for recovery from macular hole surgery.
Ask your doctor or health plan administrator if you are covered for equipment rental. I strongly advise that you get a letter from your doctor stating that the post-vitrectomy face-down equipment is “medically necessary” for your post-operative period. If either Medicare or your health plan subsequently denies you coverage, be sure to appeal their decision.
Based on your doctor’s statement of medical necessity, there is an excellent chance that your health plan will ultimately approve funding the equipment rental. I failed to get the “medically necessary” letter from my doctor and, therefore, had to pay for the rental/purchase of equipment.
If – despite the doctor’s letter about medical necessity – your health plan does not cover vitrectomy equipment and you are financially unable to rent equipment, insist on being given suggestions to relieve the discomfort of face-down positioning. Ask your doctor or health plan for a referral to a physical therapist or other health-related professional who can suggest ways to improvise using pillows, blankets, towels, and other household items.
Pillows placed at strategic body points can facilitate face-down sleeping. A large towel fashioned into a horseshoe shape can help support the head for sleep. Being able to lie comfortably on one’s abdomen is extremely important. Ask for information about locating an inexpensive mat for this purpose.
I did a lot of Internet research into equipment and called various companies to compare products and prices. Look at the equipment online. Some of this equipment may be found at major massage supply stores. I recommend finding a retail location where you can sit in/on various pieces of equipment produced by a various manufacturers to help determine what will best work for you.
Rental Equipment
I rented the following equipment. Most of these items can be seen online:
- Kneeling massage-type chair for day use
- Head support/cradle for foot of bed and seated support
- Adjustable tray placed below the face cradle
- Two-way mirror to watch TV and see/interact with people
Purchased Equipment
I purchased the following equipment. Most of these items can be seen online.
- Basic mat to relieve lower back strain while sleeping on one’s stomach
- Fleece cover for the headrest. The cover of the face cradle can become uncomfortable on the face; the fleece is much softer.
- An Ergo Spa Lounger, essentially a patio lounge chair with a large opening for the face. The Ergo Spa Lounger worked well for me during the day. Since the sides were hard, I draped a pillow over each side of the chair, under my armpits. I can no longer find it on the internet. The product is basically a lounge chair with a hole for the head so you can be face-down and read a book on the ground/floor. I advise you to search for: “Sun Lounger with Head Hole” or “Lounge chair with Face Hole” or “Portable Adjustable Garden Beach Sun Lounger Chair Bed with Headrest Reading Hole.”
We had an adjustable-height computer table in the house. A shelf mounted on an adjustable tripod would work just as well. Setting the shelf surface at chest level was very helpful to rest my head (on my folded arms or on a pillow), eat, drink, and even use the computer for short periods while standing and maintaining face-down positioning.
Advance Preparation
Anticipate what might be needed and make it accessible. The following tips may sound compulsive, but it was helpful to access what I needed easily. Obviously, everyone has different needs and different living styles.
Make Needed and Desirable Items Accessible
Before surgery, try to anticipate what will be needed in each room and make those items easily accessible.
- Set up trays/baskets on the floor in each room with items needed, e.g., toothbrush and cosmetics in the bathroom; phone, paper, and pen by the bed, etc.
- Organize all important papers so they are easily accessible.
- Place frequently used food on the lower shelf of the refrigerator door.
- Place bowls/cups/straws/cereal on a low (slide-out, if possible) shelf.
- Set up a power strip by the bed (and in other places you think you will spend most of your time) and have a stool/chair within reach. Place a box atop the stool/chair with everything needed: TV control, DVD player, portable phone with charger, cell phone and cell phone charger, medications, eye patch, and tape (first week), eye drops, tissues, comfort, and sleep aids (especially decongestant aids to avoid congestion caused by face-down positioning), audiobooks, pad, and pen, etc.
- Set up telephones with speaker modes by the bed and other places where you spend the day. It was almost impossible for me to hold a phone to my ear while my head was in a face cradle. Phones with speaker mode enabled me to enjoy telephone conversations with friends.
- Place frequently worn articles of clothing in/on a low stool or box in the bedroom to avoid having to look up for clothing items in the closet and dresser. I wore a limited number of outfits during the six weeks; they repeatedly went from the washing machine to the stool and box in the bedroom.
- While standing in a face-down position, practice finding the locations of and operating/using light switches and thermostat controls on walls.
- Try putting a facial tissue under your chin as you walk around. If the tissue falls out, your head is not sufficiently face-down.
- Make a “vitrectomy folder” with tabbed sections and keep it handy.
- Maintain a journal and keep a daily record.
Videos
Some people can watch a movie or show on a tablet while face down, either from the Ergo Lounger chair or on their tray below the face cradle on their bed. Personally, I was unable to read or watch a show.
However, you can use the tablet to listen to audiobooks.
Audiobooks
Audiobooks are available from most public libraries via an app.
I also enjoyed listening to CDs of old-time radio shows, including mysteries, comedies, and westerns.
Talking Books
You can qualify temporarily to use Talking Books and a Talking Book digital player for free (including free return postage) from the Library of Congress’s National Library Service for the Blind and Print Disabled. With the digital player, you can download books using your home computer. (My doctor signed the application form, indicating that I had a temporary problem. The equipment was returned when my vision improved.)
“Catching Up” with Tasks
Think about tasks you would normally want to do in the six weeks following your surgery. I attended to the activities listed below prior to surgery. This advanced preparation made me feel relaxed and fully concentrate on recovery during the face-down period.
- I prepared small meals, baked bread, and made soup for the freezer; I ground enough coffee for a month.
- I paid all bills (in advance, when possible) and addressed seasonal needs (preparing for income, property tax, etc.).
- I prepared visitors for what to expect when they visited. I sent an email with a photo of face-down equipment so visitors would not be surprised at my appearance. You can find photos at Kelly Comfort Solutions.
Planning a Special Project
Think about a special project or new skill you would like to learn during the recovery period. Keeping your mind occupied is very helpful. Try to identify a non-visual skill, e.g., learning a foreign language. Be sure you have the streaming services or apps you might need handy. I decided to study Italian, something that had always been of interest. Though I found it difficult to concentrate, this activity was interesting and occupied my mind.
Grooming
Wash your hair the day before surgery, as you won’t be able to wash it for at least a week. If you color your hair, be sure to do so before surgery since visitors will be seeing the back of your head during the recovery. Make sure a mirror and cosmetics are accessible.
Plan for Company
Think about events that would normally occur during your recovery period. My family usually celebrates birthdays with dinner. Since my daughter-in-law’s birthday was ten days after my surgery, I prepared dinner for 20 people in advance and froze it. Everyone had an assignment for the party, e.g., preparing a salad, buying a cake, setting tables, washing dishes, etc. This worked out well, helped continue a routine, and was a positive experience for all while I remained face-down.
Sleep Aids
These aids helped me through my recovery period. Though I did not experience any side effects from the suggestions below, you should get your doctor’s advice and guidance before trying them.
- Although I’m not a drinker, wine helped me relax and fall asleep.
- Biofreeze gel is a balm that helps deaden sensation. Rubbing it on my neck and shoulders usually made me sleep 3-4 hours. An alternative cost-free suggestion is to try ice placed in a plastic bag covered with a towel or to try warm heat to relax. Heat or cold is an individual preference; I found cold more effective. Lying face-down for extended periods tends to cause nasal congestion.
- Eucasol, an oil used to decrease the congestion caused by face-down positioning, was extremely helpful. Over-the-counter nasal decongestants may also be beneficial, though prolonged use of these products can sometimes cause worsening congestion.
- Several people suggested Tylenol PM, but I did not use it.
Eye Drops
Many eye drops are required following surgery. In the beginning, I had three different prescriptions, each to be given four times per day. After I developed high intra-ocular pressure, I was given additional drops. It’s important to keep track of the time and dosage of all of your medications. I set my cell phone alarm to ring every six hours to keep me on schedule with my eyedrops.
Eating/Drinking
Although my doctor said that I could be face-up for brief periods to eat and drink, patients who had gone through the surgery advised me to try to do so while face-down. To eat, I found it helpful to sit in a regular chair with my head down and push the chair away from the table with the plate on my lap.
Putting a tray atop a beanbag or small pillow for additional height on my lap was even more helpful. Flexible straws can be used for all drinks, including coffee and wine. Be careful not to burn yourself while drinking hot liquids through a straw.
Comfort Techniques and Aides
Again, these are things that I found extremely helpful during my recovery. Discuss these options with your doctor before trying them.
Massage
Neck and shoulders become very sore while in face-down position. I found massages to be extremely helpful. Check with your health plan to see if massage is covered or discounted. Suggest a massage if anyone (or a group of friends) wants to get you a great gift. Many people contributed, and I had massages every few days. These were extremely helpful.
Change Positions and Equipment
Keep changing positions! Move frequently between the sitting position and the lying position to give your neck and shoulders a rest. I changed positions often from the Ergo Lounger to the kneeling massage chair, to the bed (with face cradle and mat), to kneeling on the floor (while face-down), to lying on a sofa with my head hanging off the arm at the end. My home has a split-level layout. That allowed me sometimes to lie on the upper floor with my head hanging over the stairs leading to the lower portion.
Face Pillow
Even though I bought a fleece cover for it, the face cradle still rubbed my skin uncomfortably. I found that a U-shaped “Sqush” neck pillow, placed atop the fleece cover of the face cradle (with the closed end of the U supporting my forehead), was softer on my face. The “Sqush” pillow is primarily a travel or therapy neck pillow with a smooth silk-like cover filled with tiny polyethylene beads.
Shoulder and Neck Discomfort
The face-down position can cause discomfort in the shoulders and neck. My physical therapist suggested piling towels or a folded pillow under each shoulder while lying down to help alleviate some of the strain. There are also stretches you can do to help relieve the discomfort. Talk to your doctor or physical therapist for recommendations.
Riding in a Car
When riding in a car (doctor’s appointments and any other necessary trips), bring a pillow to provide the required height and support for maintaining face-down positioning.
“Silly” Suggestions
- Suggest that your guests wear interesting socks/shoes since that’s what you will look at!
- Get a pedicure before surgery (I’m sorry that I did not do so) and paint each toenail a different color or design.
- Maintain a sense of humor and encourage your guests to do so. Children enjoyed seeing my “Torture Chamber,” the name we gave to the sleeping face-cradle arrangement at the foot of the bed! A friend laughingly commented that it was disconcerting talking with me, “while your head is in your crotch”!
updated August 2023.